We really appreciated Christina Line taking time to attend the meeting, getting to know members and explaining how she is able to offer assistance to TN sufferers at home with counseling, support and information. It was asked if it was possible to access the Community Nurse services without having to go through the process of being assessed by HACC. Christine said if it was just counseling and information they could just call or email Christine for assistance at any time. RN Community Neurological Nurse Neurological Council of WA 11 Aberdare Road Nedlands WA 6009 firstname.lastname@example.org Telephone: 08 9346 7535 Mobile: 0487…
We were very lucky to have Dr Robert Delcanho come by at the last meeting, sharing his time from a very pressured pre Christmas schedule. and he had time to answer a few great questions. Everyone was most appreciative of the extremely enlightening, reassuring and enjoyable talk. We are most grateful for his continued support and work in helping TN patients.
We benefit enormously from research done by TNA in the US. They are conducting a survey which deals with the many aspects of TN and its treatments and we decided it best to let members know how to access the form or send it out with the newsletter. We feel it is important for us to take part in this survey and support and assist with any research TNA are doing. Please try and complete the survey and send it to TNA or The Support Group will forward it on. You can download the survey from TN USA by clicking here.
“I’m a 49 year woman who struggled for 13 years with TN before I made my decision to have an MVD. Today I am pain free and medication free. If I had known then, what I know now I would never had lost that much of my precious life. If even one doctor had had the guts and honesty to tell me this would never get better and never go away." Words of advice from TN patients taken from TNA Quarterly