The Trigeminal Neuralgia Support Group commenced in 1990 with the aim of providing information, mutual support and encouragement to persons suffering from Trigeminal Neuralgia (TN) and related facial pain conditions. At that time, TN was little known in the community due mainly to the fact that it affects only about one in every 20,000 people. Because of the excruciating pain, sufferers felt isolated and lacking knowledge of the medication, surgical and other options available to alleviate the pain.
Over time the support group has grown to more than 100 members and conducts meetings on a regular basis at Perth and Midland. The purpose of these meetings is to hear medical professionals speak on the latest developments in treating TN and to share the experiences of members. The support group is now affiliated with the Trigeminal Neuralgia Association (TNA) in the United States which is conducting substantial research on all aspects of treating TN.
A newsletter is sent to members prior to each meeting and contains information from TNA and other sources to assist members, particularly those unable to attend the meetings. The support group has developed an extensive library of books, and also video tapes and DVD’s of addresses given by medical professionals to the group or at TNA conferences in the US which are conducted every two years.
Membership is $20 AUD pa to cover printing and postage of the newsletter and persons seeking an application form should contact the Treasurer or Secretary.