Low Saturated Fat Diet

Read how this very easy and sensible diet can make a difference. Frank Sherwood from a Detroit and a Professor of Neurology have done a study on the treatment of TN with keeping your saturated fats to 10 grams per day. More info in the June and August Newsletters.

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Meeting held 26 April 2014 – Guest Speaker

Our Guest Speaker was skilled Neurosurgeon, Associate Professor Dr Steven Lewis. MBBS FRACS Dr Lewis returned to Perth after 11 years of experience in neurosurgery in the UK and USA. It was a wonderfully informative and interesting talk which left us with hope, confidence, and gratitude as he seemed to demystify the daunting prospect of undergoing surgical procedures for the treatment of TN. More info in the June Newsletter

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Meeting Dates – May / June

The next meetings are getting closer, let us know if you're not going to be in attendance. Perth Support Group Saturday 23 June from 2 - 4pm At Grace Vaughan House, 
227 Stubbs Terrace, Shenton Park. Contacts: Brian Power 9385 9550 Julia 9384 5816 Midland Support Group Saturday 26 May 2 - 4pm At The Ascension Hall
 17 Spring Park Road, Midland Contact: Gill Wood 9299 6452

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Meeting Dates February 2012

The next meeting dates are coming up, let us know if you're not going to be in attendance. Perth Support Group Saturday February 25 from 2 - 4pm At Grace Vaughan House, 
227 Stubbs Terrace, Shenton Park. Contacts: Brian Power 93859550 Julia 9384 5816 Midland Support Group Saturday 3 March 2 - 4pm At The Ascension Hall
17 Spring Park Road, Midland Contact: Gill Wood 9299 6452

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Community Neurological Nurse

We really appreciated Christina Line taking time to attend the meeting, getting to know members and explaining how she is able to offer assistance to TN sufferers at home with counseling, support and information.  It was asked if it was possible to access the Community Nurse services without having to go through the process of being assessed by HACC. Christine said if it was just counseling and information they could just call or email Christine for assistance at any time. RN
Community Neurological Nurse Neurological Council of WA 11 Aberdare Road Nedlands WA 6009 christina.line@ncwa.com.au Telephone: 08 9346 7535  Mobile: 0487…

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Guest Speaker Dr Delcanho

We were very lucky to have Dr Robert Delcanho come by at the last meeting, sharing his time from a very pressured pre Christmas schedule. and he had time to answer a few great questions. Everyone was most appreciative of the extremely enlightening, reassuring and enjoyable talk. We are most grateful for his continued support and work in helping TN patients.

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TN Survey

We benefit enormously from research done by TNA in the US. They are conducting a survey which deals with the many aspects of TN and its treatments and we decided it best to let members know how to access the form or send it out with the newsletter. We feel it is important for us to take part in this survey and support and assist with any research TNA are doing. Please try and complete the survey and send it to TNA or The Support Group will forward it on. You can download the survey from TN USA by clicking here.

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Words of Advice

“I’m a 49 year woman who struggled for 13 years with TN before I made my decision to have an MVD. Today I am pain free and medication free. If I had known then, what I know now I would never had lost that much of my precious life. If even one doctor had had the guts and honesty to tell me this would never get better and never go away." Words of advice from TN patients taken from 
TNA Quarterly

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